1 in 68 children have autism!

Tyler bubbles

 

I’ve cursed God many times for Tyler’s diagnosis.  As a parent, it’s so hard to watch your child go through each day with anxiety, obsessions, ridicule, and just the unknown of what he may be feeling.  Parenting is an extremely difficult job, toss Autism in the mix and you are dealing with a whole new beast.  We “autism parents” find support within our own communities to help and mentor us through these challenges.  These communities do so much more then help us financially, emotionally, and spiritually.  They help spread awareness.  You see… we special needs parents deal with more then just everyday meltdowns and obsessive schedules, we deal with the idea  of the future.  Where do our kids go from here?  Where does this unforgiving world take them?  Who will stand beside them and be their supporters?  It’s more then just passing the tests and grades.  It’s about how the world will accept our kids and how these two worlds will function.  It’s this indescribable fear each and everyday that we share.  It’s these “villages” that help raise awareness, help build our communities to be ready and open to our children.  It’s these “villages” that will not allow our children to be anything less then great in this world.  Yes, I may curse, but I also am blessed to have a child with a strength far beyond anything I know.  To share him with the world is a blessing for me.

The Spectrum Group is a village to so many parents and especially the kids and young adults on the spectrum.  Spectrum is a parent operated group whose mission is to provide support, education, and resources encompassing the entire spectrum of ASD for children and adults.

I will be racing, once again, at Ironman Florida on November 1, 2014!  This is a 2.4 mi swim, 112 mi bike, and 26.2 mi run.  Small change compared to everyday challenges our kiddos face.  I’m asking you to help me, help them.  Help me support this village that gives so much!

” A child with Autism is not ignoring you, they are simply waiting for you to enter their world”

 

CLICK ON “IRONMAN FOUNDATION” AT THE TOP!

Or mail your contribution to Ironman foundation to:

3683 Brookefall Ct, Suwanee GA 30024

 

 

 

Ironman 2014 in the books!

I’m awake at 2:30 listening to the waves crashing outside my window.  I can’t sleep thinking about this swim and what it probably looks like outside my window.  Do I look?  Of course I do!  White caps everywhere.  Not going to be a fun swim today!  I got up at 4:00 and immediately started to get ready.  I wasn’t expecting everyone to get up with me, but they did:)  I filled my bottles with water, carbopro and nunn, grabbed my “food” of waffles and gels, garmin and bike pump.  Time to go see what this day is going to look like!  As soon as we opened the door I knew it was going to be a long day!  Cold, windy and windy!  My instant thought is that I have nothing to wear on the bike!  Walking to the beach with the wind blowing and kids wearing hats and gloves, they cancelled the swim.  I was so disappointed.  To come this far in training and not do what you have been training to do for months is devastating.

I was lucky to have  a lower number, 481!  Standing in transition with compression socks for warmth, arm warmers, and a long sleeve tshirt waiting to go.  Teeth chattering, legs shaking, fingers and toes numb….got to love the unexpected race day!  I started at 8:36ish and was just happy to get on the bike and start moving.  I heard the family call my name, but honestly, I was too afraid to take my eyes off the road or my hands off the bike.  40mph gusts were not pleasant.  At one point a woman came up to me from behind and congratulated me on saving myself from a crash.  “you were sideways”!  That was at mile 4, 108 more miles, ha!  The bike was tough.  The winds and the cold made it hard to control the bike, I left the bottles on the back cages alone – couldn’t bring myself to reach for them!  and I wasn’t expecting cold!  We started warming up half way through and I pitched the tshirt.  Nutrition was great, or maybe lack of sweat.  Two restroom breaks on the bike was a first!  Coming into the final stretch was awesome!  Finally!  Lots of crowds cheering and I couldn’t wait to see my clan!

Coming off the bike was shaky!  I could hear everyone calling my name and I waved.  Into transition.  Compression socks off!  New socks, ahhh!  Gels, water bottle, hat, I’m ready.  Potty break again!  Came out on the run course and saw everyone!  Yeah!!  How awesome it was to see them!  Jax sleeping through the whole thing!  Always a boost to see support!  I can do this run.  I was injured back in August with a torn calf muscle.  I had to take a month or so off and then gradually bring back the running.  My longest run before the race was 8 miles, so I knew this was going to hurt!  If I kept my pace down, I felt like I could do it with a good finish.  First half was good, I was tired, but my nutrition was great!  I wasn’t hungry or felt sick.  Saw the clan again at the turn around and took in the crowd calling out my name!  I can hold this together!!  By mile 16 I told myself that I would let myself run 4 min, walk 1 min starting at mile 17.  At mile 17, I decided to start at mile 18. At mile 18, I decided to start at mile 19, and so forth!  I stopped to use the restroom and put my arm warmers back on, it was getting darker and colder!  By mile 20, I’m thinking I only have “1 loop” or a 10k to go.  This is when it started to hurt.  Bumps or inclines were grueling.  I passed the timing chip locator around mile 22 and I really wanted to walk after that, but I knew the clan would have seen my pace and timed when I may be coming in for the finish.  I didn’t want them waiting around too long and have the kids getting restless (although I’m sure they were already!).  By mile 24 you are hearing the crowd.  Hearing “you are an ironman” and I know I’m so close.  You start thinking about walking, but remember all the people in this world and ones who have left that can’t do what I’m doing right now.  I have no reason to stop.  I’m not sick, my legs are moving, I feel fine other then pain and that will pass!  I can do this.  The last mile is awesome!  People cheering you on!  If you smile they love it and gets everyone even more pumped up!  Coming down the chute I see JP jumping up and down and I raise my hands!  I did it!!  I saw everyone next and I high five and scream!  I can’t stop because it will hurt if I do!  Coming across was awesome!  I did it!  I ran that whole thing, not fast, but I didn’t stop!  A first for me!  Looking at the time I knew if I would have had that swim in, I still would have beat my best time!  I will take that!

Seeing the family was great!!  Tyler was so excited!  He gave me a hug and was telling me about the people coming down the chute and how they were Ironmen!  Looking at all my friends and family there and knowing how I’m the luckiest person ever!  Accomplishing another Ironman, having so much support and people that I love and who love me back.  Knowing all the people out in cycber world who were with me!  All the people who donated to my cause, even if it wasn’t their cause, they knew how important it was to me!  Thank you!  And to my parents who were riding on my shoulder through that bike and who I talked to when things were hard, I love you!  And to Jeff, my husband, who always puts up with my obsessions and early morning workouts.  You’ve always supported my craziness and I love you! And to all my spectrum clan, I know it sounds cliche, but as Ironman likes to quote, “anything is possible”!

 

Ironman Florida my story!

I surprisingly got some good sleep. Exhaustion! I wasn’t prepared as I usually am with breakfast, so it was some energy bars and out the door. Walking to the race was very quiet. I didn’t say much, just in the zone and thinking about what I needed to do. I was about to be an Ironman! I take my special needs bags to the drop off and go to fill my bike. Put water bottles on, food in the pouch and inflate tires. My back tire valve was a little loose which was mentally a set back. Please God, no flats! Put the Garmin on the bike, turned it on and said see ya in a bit. At that point, we came as a group and chatted about the day. Lots of excitement, lots of people, lots of athletes, yikes! My family and friends finally made it to us and they surprised me with T-shirts and signs! The emotions began….. please don’t cry yet! We talked and I got the wetsuit on shaking like a leaf. We said our good byes and we left for the beach.
Reaching the beach was a little surreal. Cool temps, cool soft/sand on your feet and the colors were pink, light blue and white. Ocean looked Caribbean blue and a lot of people with pink and green swim caps littered the beach. The pros did their start with a loud boom! Our turn! We walked our way through the arch while singing the star spangled banner. Everyone was silent. Big cheers and we all made our way to the edge of the water. The surf was pounding, but the water was great and couldn’t ask for much more. And then silence. “Boom” the cannon went off and it began! This is when the madness began. Arms, bodies, legs everywhere. It made it very hard to sight the buoys, but I just kept moving forward. I started feeling the burn in the beginning and started to think about how long the day was going to be. Always hoping for a good day, couldn’t believe it was finally here and I was actually doing this! Coming around the buoys was hard – so many people. I came out of the water for the first loop and I heard my name…. Coach Debbie! I smiled and waved and got back in the water. I got this! This was confusing because it didn’t start where we did before. The second loop was a little better and was little more spread out. By the time I came in for the home stretch it was good. Came out of the water and went to the “strippers”. “Lay down, hips up and hold your pants”! They lifted me up, threw the wetsuit at me and said “go, go, go”! Ran to transition calling out my number. I sat down and got my shoes, socks, helmet, and nutrition and went out the door. Someone was waiting with my bike – nice!! Took it to the line and got on to go. I saw the family going out and I felt so good!! Let’s roll! I was excited to get started! I had my Perform, little bit of water, Cliff bars and shot blocks. Just need to get to the stretch and settle in for the ride.
Riding the bike down the strip was a great feeling. Perfect temperature, water was beautiful and tons of people cheering you on! The streets were blocked off so it was a clean get-away. The first big stretch was just getting comfortable and calming down. Went over the bridge (hill) with no problems. Crazy guys in Speedos helped with that! Dan passed me @ mile 50 and then we hit a stretch of rough road…literally. It made it hard to hold the handle bars or drink water. I didn’t stop for the special needs bag. Saw a person throwing up, lots of people with flat tires and one guy laid out on the side of the road. Lots of people drafting. Thank God no flats and I still felt good! Coming back into the final big stretch was all headwinds and made it difficult. Just keep spinning. Coming back onto the strip, I knew I had a good time and I felt strong. Lots of people along the strip cheering you on and I was screaming with them! Saw a guy that I had met on the Silver Comet with same bike, yay! Said good luck and passed him. Rolled into transition! I felt like a rock star and I was ready to run!
I felt great, took an Advil and salt tabs, changed socks, hat, shoes and came out of transition for some sunscreen. Came down the chute and saw the family again! It’s such a power boost to see them. It’s rare I get to share my races with family and friends and for them to “get it”! The beginning of the run was awesome, I felt like an Ironman. Strong, excited, wanted a fantastic time! I just needed to keep that heart rate down! Tons of people were out cheering you on for the first mile. I held a bottle in hand and filled it at each mile marker. It started getting hot for me and I started using a lot of sponges and ice down the shirt. I ran for first 10 miles and walked a bit. Made it to the loop and saw Lisa who was so excited and it gave me a HUGE boost! By mile 14-15 I couldn’t take in any gels or water. My mouth started to water and I felt nauseous. I went to the lovely porta potty and felt a little better. I kept trying to run, but it was difficult because of my stomach and having to stop every mile to go to the bathroom. At this point, it started to get dark and I realized I wasn’t going to make a sub 12:00 time. In the moment, it didn’t matter. I sipped on chicken broth and flat coke and felt a little better. I realized I could possibly make 12:30 and I told myself I would. I made it to the last mile and the people got me through it! I ran the last part and made it to the chute!!!
Reaching the chute was the beginning of the end of my journey. People were cheering “you go girl”, “go Carrie” and “you did it!” I tried to hold back the tears. I was smiling, had chill bumps, I was high 5’ing everyone and running. This was it, really IT! I saw my family and friends and said “heyyyyy”! High 5’ing and got to the end. Coach Kellye was there and made me smile! She caught me as I came across the finish line and it was over. I couldn’t cry, couldn’t really smile, I was just in awe. I finished, I did it, I was an Ironman!
I got my picture and started towards the gang. I hugged Lisa and was so happy to be doing it again 12:23 hours later. I hugged Anita next and I started crying. This is when I could literally feel my mother through her and it was so relieving, emotionally and spiritually. I could finally let go and stop. Literally stop. I was done. I hugged everyone, I was so happy, excited, sick, tired and wanted to sit down. The kids and Jeff came and it was so good to see them and hug them. To hear what they had to say. Tyler kept saying “you’re an Ironman”! I couldn’t believe it was really over and that I had felt that bad, but that good. I was very sick. I retrieved my bike and bags and went back to the room. I really wanted that pizza and beer, but there was no way. It would have to wait. My spirit was high, but my body was done.
What an amazing experience. It never really seemed like it was that long. It never seemed like it was impossible. You just did it and moved forward. I felt strong the majority of the day. Even when I was sick on the run. If my stomach would have been better, I would have done a sub 12:00. Words can’t describe this feeling. I hope all Ironman races are this way because this you will never feel anywhere else. Spiritual, excitement, happy, victorious….goes on and on. I can’t wait to do the next one. I hope I can have the support and patience from myself and my family for the next one like I did here. Panama City Beach will never be the same! Ironman Florida

After the Ironman

After the Ironman

Tyler on the left and Jax on the right!

1 in 88 children have autism

This is my son Tyler.  He has autism and this is my cause.

 As a new parent, you dream of what your child will become later in life.  What sports they may play, what friends they will have, what college they will attend.  As a parent with autism, you dream of the next day.  Will my child ever speak a full sentence to me, will my child ever be able to run down the street and play with the neighborhood kids, will my child ever be able to sit in class and learn like any other child, and most of all, will anyone understand him…. or me for that matter.  Autism is a lonely diagnosis and a fight for the rest of yours and especially their lives.

I will be racing in my first full Ironman triathlon on November, 3, 2012.  This is a 2.4 mile swim, 112 mile bike and a 26.2 mile run.  Although I have found support in my life, there are people who are in need of support both emotionally and financially.  On November 3rd I will be racing for our local organization called Spectrum.  They provide these wonderful resources to the ENTIRE family.  I’m asking you to help me, help them.

Spectrum Autism Support Group (SPECTRUM) was established in the fall of 1998 for families, friends and teachers of children with Autism Spectrum Disorders (ASD) within Gwinnett County, Georgia and the surrounding areas. It is a parent operated group whose mission is to provide support, education and resources encompassing the entire spectrum of ASD for children and adults.

Any donation is accepted! To learn more, click on IRONMAN FOUNDATION at the top of the page.

From the bottom of my heart, I thank you!